How NFTs could transform health information exchange
Research output: Contribution to journal › Journal article › Research › peer-review
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How NFTs could transform health information exchange. / Kostick-Quenet, Kristin; Mandl, Kenneth D. ; Minssen, Timo; Cohen, Glenn ; Gasser, Urs; Kohane, Isaac ; McGuire, Amy L. .
In: Science, Vol. 375, No. 6580, 2022, p. 500-502.Research output: Contribution to journal › Journal article › Research › peer-review
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TY - JOUR
T1 - How NFTs could transform health information exchange
AU - Kostick-Quenet, Kristin
AU - Mandl, Kenneth D.
AU - Minssen, Timo
AU - Cohen, Glenn
AU - Gasser, Urs
AU - Kohane, Isaac
AU - McGuire, Amy L.
PY - 2022
Y1 - 2022
N2 - Personal (sometimes called “protected”) health information (PHI) is highly valued (1) and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data (2). Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.
AB - Personal (sometimes called “protected”) health information (PHI) is highly valued (1) and will become centrally important as big data and machine learning move to the forefront of health care and translational research. The current health information exchange (HIE) market is dominated by commercial and (to a lesser extent) not-for-profit entities and typically excludes patients. This can serve to undermine trust and create incentives for sharing data (2). Patients have limited agency in deciding which of their data is shared, with whom, and under what conditions. Within this context, new forms of digital ownership can inspire a digital marketplace for patient-controlled health data. We argue that nonfungible tokens (NFTs) or NFT-like frameworks can help incentivize a more democratized, transparent, and efficient system for HIE in which patients participate in decisions about how and with whom their PHI is shared.
KW - Faculty of Law
KW - nonfungible tokens
KW - health data
KW - blockchain
KW - smart contracts
KW - cybersecurity
KW - technology governance
KW - data sharing
KW - IP
U2 - 10.1126/science.abm2004
DO - 10.1126/science.abm2004
M3 - Journal article
C2 - 35113709
VL - 375
SP - 500
EP - 502
JO - Science
JF - Science
SN - 0036-8075
IS - 6580
ER -
ID: 279428921